"We are here to help until THE cure is found!"

The Addy Grace Foundation

The Addy Grace Foundation (AGF) is a 501c3 nonprofit organization focused on raising awareness of Spinal Muscular Atrophy (SMA).  Our mission is to help build relationships and be a source of encouragement to families affected by SMA.  We are here to help until THE cure is found!

Facts About SMA

  • SMA is a motor neuron disease.
  • The motor neurons affect the voluntary muscles that are used for activities such as crawling, walking, head and neck control and swallowing.
  • 1 in 6000 babies born are affected by SMA.
  • 1 in 40 Americans are genetic carriers.
  • Currently there is no treatment or cure for SMA.

Contact Us